Well, the news is not good. The treatment doesn’t appear to be working. All tumors in my brain are growing and I am doing worse every day (literally). Losing control of my body, motor function, … you don’t want to know the details. Its not a pretty sight. My doctors are talking about hospice now, they have one more chemo option, but are also talking about stopping everything and “letting me go in peace.” Not quite ready for that, and besides, I feel all but peaceful right now (who would with that news?!).
So we are back to researching treatment options, side effects, trials the whole thing, except that I can’t contribute much at all since I am such a mess. My friend Nicola and Frank from Germany have helped a lot on that front in the past and are back on the “team” now as well.
Other than that my aunt & cousin came up from DC to visit for Thanksgiving, and brought the entire Thanksgiving dinner with them! My mother came rather spontaneously as well, so we had an American Thanksgiving with only 1 American, 4 Germans, + 2 dogs! It was very nice. We managed to finish off the Turkey in just 2 days! (and no, the dogs didn’t get to help).
Besides that, New York is freezing. Seems like we skipped fall and went from summer to winter. I have a wheelchair now. We are going through all kinds of different rental models trying to find the right one. Its horrible to be so dependent, but on the other hand, that chair makes me feel much safer, otherwise I could never leave the apartment anymore!
Thats it from
Shani/Beatriz in New York.
Ps: I might not be writing for a while, but wanted to send a post before things get even crazier.
And thanks to everyone for food and things, it’s one big worry off the list.