It is by now clear that the Boston trial is not working, and I wasn’t even able to make it up there for the last visit. I was too sick to make to my own trial. Anyhow, so I initiated Plan B, which consists of implanting another “port” in my body, (scalp), to provide a chance of access for the chemo tor each those nasty tumors. I could explain much more, but I figured that not everyone is interest in those nitty gritty details and it hard for me to type these days. Might be best to respond to Robert and not me for the time being.
I am also sending this as a “cry for help” to my NYC based friends, Robert and I are not handling the situation very well anymore. its just too much, especially the cooking duties. I know a number of you have offered in the past, ever since the “meal train” collapsed by the end of spring semester and after the “summer hole” when everyone is fleeing NYC, and i was holding back a little. Even just socializing or communicating is very taxing to mr. Anyhow, I guess what I am trying to say is that we would really use the help,but might not not e good host by any means. For those who participated in the mealtrain last time, we could just activate it again. As you can probably tell, typin is very difficult for me right now, and any logistic type of occupation should probable be shared with Robert as well.
OK, my eyes are closing on their own. This week my mother and Frank are flying in from Europe, so we are covered. The week after (starting Oct 10 we could use some dinner cooking assistance/deliveries. I know this is a lot to ask, an I am nor doing it lightly. We are also looking into different social security typr of things, such as meals on wheels, homecare programs, hospice…., palliative care none of which sound all that appealing to me, but certainly a step up from canned soup at the corner store.
Anyhow, thats enough for tonight, No cute Lucinha pictures in this post, but we took her to CT to the beach and she loved it of course. And who is more important als Sie ?! Nobody I I can think off…
Future posts might be coming from Robert on my behalf. Don’t be alarmed, doesn’t mean that I sm not around anymore, just means that my ability to type is